Sitting!

Tyler can totally sit up unattended all by himself! He's been so close for awhile, and he's really doing it now!

He's also starting to spend more and more time on his tummy and can handle (happily) 5-7 minutes of it. We've also been working on trying to get him to bear weight on his legs, because he has this strange adversion to want to stand up. I don't like knowing that my 10 month old still isn't able to freely move around on his own, but everyone who's evaluated him says it's completely normal for us to notice setbacks of gross motor development in Tyler's case. All we can do is work with him, and one day I suppose it will all click and he'll have enough strength and will power to want to conquer it all. I mean, he's just now sitting up (something that a healthy 4 month old can do) so maybe in another six months (when he's 16-17 months old) we'll be seeing him crawl and/or walk.

Parents As Teachers came today. We had a fun time and Bobbi loved what she saw! She is impressed with how well he's acting, communicating, and moving in only three weeks since surgery. Our next appointment with her is July 18th.

Cardiologist appt. was today . . .

I took Tyler to CMH Cardiac Clinic at 1:30pm today for his first post-op visit with Dr. Kaine since the Glenn, and thankfully there is nothing major to report! We had an ECG done, but not an ECHO. I believe they are going to wait until his July appointment to do that.

I really had no particular compaints or concerns for the doctor today. Tyler's sweatiness has decreased a great deal when sleeping or eating and his activity level is good. He's not fussy and I really think he's over the hump of being too awful sore. He was cheerful and happy during the appointment and even caught a short nap while we waited to be seen!

His current medications include Digoxin 0.6 mL b.i.d., Captopril 5 mL three times/day, Aspirin 20 mg daily, Lasix 0.7 mL one time/day, and Zantac 3.3 mL two times/day.

Today he weighed 7.126 kg (15 lbs 12 oz). His pulse was 111, respirations 24, oxygen saturation was 80, and blood pressure 107/63. He is relatively pink and well perfused and his lungs were clear. Femoral and peripheral pulses were all easily felt! His incision as a whole is healing well. The part of the incision that was infected with pseudomonas has a little bit of delayed healing compared to the rest, but is still healing very well. So in a nutshell, Tyler basically had a great appointment, and Dr. Kaine is pleased with Ty's Glenn result.

Heart Walk

A special thank you goes out to the following people for joining Tyler yesterday as they participated with us in his VERY FIRST Greater KC AHA Heart Walk! We couldn't have asked for a better turn-out in support of our HLHS kiddo. It was so much fun and we're already looking forward to next year! (Oh, by the way, we are totally doing the 4 mile trail in 2009...)

Allison
Katy Crookham
Cari Kelly
Rebecca Kelly
Chad Esslinger
Kelly Breuer-Esslinger
Ron Esslinger
Jenny Kelly
Brenn Kelly
Jill Breuer
Kathleen Gibson
Debbie Breuer
Chambre Riegel
Bob Williams
Julie Williams
Jamie Urton
Zach Urton
Sharon Nowak
Steve Nowak
Brandy Russell
Christina Smith
Ginny Reischman
Sarah Breuer
Mary Nutter
Big brother Jarrett
Mommy & Daddy

To everyone who made a donation on Tyler's AHA website or contributed by cash/check for this year's American Heart Association Heart Walk fundraiser, we'd like to thank you again! We were able to raise a total of $2,690 and it couldn't have been possible without you!