The update from Wednesday's Cardiologist appt --
Tyler was given a good report! He was scheduled to also have an echo during this appointment, but since Dr. Kaine felt great pulses in Ty's lower body (as well as upper) and that his blood pressure (on his leg and on his arm) were nice numbers, he didn't think it was necessary to do one. So, now we just pray he makes it 'safely' to the end of April for surgery. Dr. Kaine thinks he should have no problem going another 30 days. I was happy to hear that!
On Sunday we are going to Lone Summit Ranch, in Lee's Summit for the annual member picnic sponsored by our support group, CHD Families Association. It will be nice to mingle outside of a meeting atmosphere. We're looking forward to it and from the sound of it, there are many activities planned.
Saturday, March 29, 2008
Monday, March 24, 2008
The Latest and Greatest
Tyler is hanging in there- waiting for the next surgery. He's such a tough little fighter! Like I said in an earlier post, it's scheduled for April 29th. You can definately tell he is outgrowing his one-sided heart though. He's finally starting to look a little blue and dusky on a daily basis. Also, his oxygen saturation is trending downward which is another sign that he needs the next staged surgery soon. He is still slowly gaining weight... currently he is just shy of fifteen pounds.
He is growing up though and is so smart! He loves to play Peek-a-Boo and his new favorite game is "Mommy Pick-Up." His first tooth popped thru on March 10th; it was the bottom left! His second tooth, the bottom right, popped thru on March 16th. Last week during his Parents As Teachers monthly meeting, our Parent Educator completed his 1/2 birthday assessment. It was an "ages and stages questionnaire" that scores a baby's physical and intellectual development amongst the average. He lags in Gross Motor, but isn't considered 'behind' yet. Gross Motor covers things like crawling and standing with support. Two things he isn't doing. However, Tyler is at or exceeding in the following categories: Communication, Fine Motor, Problem Solving, and Personal-Social. We are happy to see and hear that he is following the curve!
Tyler has a cardiologist appointment on Wednesday and he will be getting an echo as well. It's the first checkup since his Cath & Angioplasty in February. We're praying for a good report. I will update soon after.
He is growing up though and is so smart! He loves to play Peek-a-Boo and his new favorite game is "Mommy Pick-Up." His first tooth popped thru on March 10th; it was the bottom left! His second tooth, the bottom right, popped thru on March 16th. Last week during his Parents As Teachers monthly meeting, our Parent Educator completed his 1/2 birthday assessment. It was an "ages and stages questionnaire" that scores a baby's physical and intellectual development amongst the average. He lags in Gross Motor, but isn't considered 'behind' yet. Gross Motor covers things like crawling and standing with support. Two things he isn't doing. However, Tyler is at or exceeding in the following categories: Communication, Fine Motor, Problem Solving, and Personal-Social. We are happy to see and hear that he is following the curve!
Tyler has a cardiologist appointment on Wednesday and he will be getting an echo as well. It's the first checkup since his Cath & Angioplasty in February. We're praying for a good report. I will update soon after.
Sunday, March 23, 2008
God's simple Easter reminder
Easter came upon us quickly this year. Many of us had been out buying baskets, grass, candy, and all kinds of "goodies" to surprise our kids with this morning! It is so much fun to get caught up in the bright colors and cheery decorations that Easter has to offer. But, we can't let this holiday slip away without recognizing its true meaning and passing this on to your children. It is a time of celebration of the resurrection of Jesus. The time when he overcame death and rose to live in heaven forever. And, because He has risen, we have been given the hope of eternal life. “Arise, shine, for your light has come, and the glory of the Lord rises upon you.” – Isaiah 60:1
A prayer from my family to yours:
God of light and love, thank you for your mysterious ways. As we celebrate the Easter mystery, give us new eyes so we may witness your Spirit alive and at work in our world and in our lives. Help us to find your Light in the darkest of times. My heart leaps with joy and my soul is awakened with every glimmer of your Light. Thank you for the blessings of Spring, it is a sign of new growth and rejuvenation that is to come, and continue to remind us that you are always near. Amen.
My greatest gift is that of my children. Bless them with love, mercy, justice, and health. Thank you Lord.
Happy Easter to All!
A prayer from my family to yours:
God of light and love, thank you for your mysterious ways. As we celebrate the Easter mystery, give us new eyes so we may witness your Spirit alive and at work in our world and in our lives. Help us to find your Light in the darkest of times. My heart leaps with joy and my soul is awakened with every glimmer of your Light. Thank you for the blessings of Spring, it is a sign of new growth and rejuvenation that is to come, and continue to remind us that you are always near. Amen.
My greatest gift is that of my children. Bless them with love, mercy, justice, and health. Thank you Lord.
Happy Easter to All!
Friday, March 7, 2008
Quote of the Week
Half of a Heart
It's a beautiful day up in Heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born.
One of the sweetest angels says to Jesus, "I don't want to leave, I like it here, and I will miss you dearly." He reassures the scared little cherub by telling him that everything will be okay, and that he is just going for a visit.
He is still not swayed on this idea. So Jesus kneels down and says, "How about if you leave half of your heart here with me and take the other half with you; will that be better?" The angel smiles and says, "I guess that will work."
But the little cherub is still scared. He now asks, "Will I be okay with only half of my heart?" Jesus replies, "Of course you will, I have other angels there that will help you and your family out, and you'll be just fine."
Then Jesus gives the angel more details about this plan. He says, "When you are born, your Mommy and Daddy will be very scared, so you must be strong, and on days when you feel weak, just remember that I have the other half of your heart. Enjoy the time spent with your family; play, laugh and smile everyday. And when it's time to come back Home, I will make your heart whole again. Always remember your heart is not broken, little one, it's just torn between two loves." -Unknown
Reflection:
I am sure this is the conversation Tyler had with Jesus while still in my womb. Not a day goes by that he's not smiling, laughing and soaking up all the love and attention he gets from his family. We've met so many wonderful families who have walked this path before us, and I can honestly say their personal experiences have touched and strengthened our lives. We now pray for all of the unknowing families who will someday find themselves on our path, and hope we can touch their lives, like others have done for us.
It's a beautiful day up in Heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born.
One of the sweetest angels says to Jesus, "I don't want to leave, I like it here, and I will miss you dearly." He reassures the scared little cherub by telling him that everything will be okay, and that he is just going for a visit.
He is still not swayed on this idea. So Jesus kneels down and says, "How about if you leave half of your heart here with me and take the other half with you; will that be better?" The angel smiles and says, "I guess that will work."
But the little cherub is still scared. He now asks, "Will I be okay with only half of my heart?" Jesus replies, "Of course you will, I have other angels there that will help you and your family out, and you'll be just fine."
Then Jesus gives the angel more details about this plan. He says, "When you are born, your Mommy and Daddy will be very scared, so you must be strong, and on days when you feel weak, just remember that I have the other half of your heart. Enjoy the time spent with your family; play, laugh and smile everyday. And when it's time to come back Home, I will make your heart whole again. Always remember your heart is not broken, little one, it's just torn between two loves." -Unknown
Reflection:
I am sure this is the conversation Tyler had with Jesus while still in my womb. Not a day goes by that he's not smiling, laughing and soaking up all the love and attention he gets from his family. We've met so many wonderful families who have walked this path before us, and I can honestly say their personal experiences have touched and strengthened our lives. We now pray for all of the unknowing families who will someday find themselves on our path, and hope we can touch their lives, like others have done for us.
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