Well it started out as a pretty cruddy day.
Last night, Tyler was constantly fussy and barely slept at all, which is totally unlike him.
Then Jarrett woke up at 5:30am unhappy and not wanting Daddy to go to work.
Around 9am today, Tyler started getting irritated and screaming for what I thought was just 'no reason'... BUT there WAS a reason.
Come to find out, the Portagen formula recipe the discharging nurse told me to use was totally incorrect. She was having me prepare it to 30-kcal which is NOT right! Especially for an 8 month old baby.
When the doctors started him on it in the hospital it was only prepared to 20-kcal. So as he was getting the 30-kcal feedings last night and this morning, it was just too rich for his gut, causing him to get a severe upset tummy.
I finally got the situation resolved after calling the Nutrition Department at Children's Mercy Hospital today. The dietitian who helped me was appalled with the situation that resulted from the discharging nurse's lack of knowledge on Portagen and the fact that his dietitian while inpatient didn't do their own discharge.
However, since about 4pm this afternoon, he's been back to his happy self again. In my opinion, a mistake like that shouldn't have been made.
Tuesday, May 6, 2008
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4 comments:
That's horrible. What age should be getting the amount? I know that Kaden does...and I think Ava is getting 28. Ava is on the same type of formula. Just curious. I am glad you found a resolution quickly.
So sorry you had that experience Katie. That should not have happened...perhaps you could speak to the patient advocate about it so that things can be put in place to make sure that dieticians do their jobs and RN's do not give out info on things they do not have knowledge on. Unfortunately you had to go through that but I bet that it gets resolved and doens't happen to another family. Glad to hear Tyler is feeling better. Thinking of you often.
Mel
I really appreciate this blog. It helps me to keep current on Tyler's continuing journey. He's been through too much to let an upset tummy get him down. Hope that today (Wednesday) was much better for all the Breuer clan! You all continue to be in my prayers. Hang in there!
I totally feel your pain on stupid mistakes. Our hospital is notorious for stupid mistakes like that.
They actually sent my son home with an NG tube and didn't show me how to replace it....he's TWO!!
He had it pulled out before we even got home. Ugh.
They also overdosed him on pain meds and almost cost him his life. I would love it if there was a different children's hospital in our state, but we are stuck.
So glad that Tyler is doing well. He looks great!!
I have been following your blog for a while, just haven't had alot of time to comment.
Pam and Rhett
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