He's doing well!

Weight gain has finally slowed down - due to his heart working so hard to keep up. He's burning some major calories with how crazy active he is now. At this time, Tyler's main source of feeding remains to be thru his g-tube. Still barely any jarred baby food taken orally...but this week we've made leaps and bounds because he isn't gagging as much as he had been when the spoon meets his lips!

His sleeping saturations have been averaging anywhere between 74-76. Honestly, he really does seem to still be doing 'fairly' well. I took him in for a well child visit to our primary pediatrician, Dr. Yu, on the 8th... Dr. Yu said his pulses were awesome and that his weight gain AND height is following a beautiful curve. He said the size of Tyler's liver felt good... he could barely feel it a tiny bit lower, but that it wasn't a size that screams heart failure. He doesn't think Tyler will have any problems making it to the 29th for surgery. So far there is no sign of sickness and his lungs were very clear. All in all, he observed no concern in Tyler.

Even though I am giving a good report, Tyler has been asked to wait too long (in my opinion) and cannot wait much longer for the bi-directional Glenn. I am going stir crazy in this house not being able to take my boys TOGETHER to the park, TOGETHER shopping, start Jarrett in preschool, spend a day at Grandma's, picking up one week and heading to Colorado, etc.... Things that I would have been doing had he not had this heart defect. However, by not doing those things, I've managed to keep him healthy thru what has been one of the worse RSV and flu seasons. Yes, it's starting to warm up and the sicky-season is fading away, but I am still constantly staying home and washing hands, sanitizing door knobs, etc... following the same daily cleaning routine as always. I guess whatever I am doing is working.

So 11 days and counting. I've literally started to get nauseous just thinking about doing this all again. Reality is setting in. It's like, as soon as I make it past one struggling milestone, there's another one waiting on my doorstep. Vent. Deep breath. Sigh.