Countdown: 6 days

Tyler has had major drops in his saturation this past week. Instead of staying steady at 74-ish while sleeping, he has been right at 70-71 while sleeping. He has also been very pale and dusky on his whole body that started a few days ago. We were half tempted to take him in to Mercy last night because of his saturations, but didn't because he would have had to be seen in the ER... and cardiology strictly told us to stay away from the ER unless he is showing multiple signs of heart failure - because of the increased number of illnesses there.

So we made a call to the cardiac clinic this morning describing last nights events and they told us to start putting him on the Pulse Oximeter for a 10 minute interval every three hours while he is awake. They also said if his awake saturations are 73 or lower we have to wave the oxygen in front of his face until his sats bump back up, and at night he will be wearing an oxygen nasal cannula because sats sometimes dip below 70. Surgery is just around the corner, and we pray he makes it thru the weekend since pre-op is on Monday.

And as for lil' Jarrett, even though he is healthy, he won't be able to enjoy his Uncle's rehearsal dinner (Thurs.) and wedding reception (Fri.). Because of the high possibility of catching a bug that has frequented a few children in the family, Mercy doctors advised us during this morning's phonecall, to keep Jarrett as far away as possible from situations that may expose him to bacteria that could potentially be introduced into Tyler's sterile environment at home. (especially this close to the surgery date) Our nurses and doctors have been aware of this weekend's wedding for quite a few months now and know just how important it is to us. So out of respect to the Bride and Groom, they told us that under our discretion we could still allow Jarrett to do his duties of ringbearer during the ceremony, but then he'll have to come home.

To Sarah & Scott: Please know we love you and wish that our "whole" family could join you on your blessed day. We know it will be beautiful and hope your new life together is filled with many wonderful memories!